NATIONAL ORGANIZATION FOR RARE DISORDERS (NORD)
Description
DEDICATED TO HELPING THE NEARLY 30 MILLION AMERICANS WITH RARE DISEASES, AND THE ORGANIZATIONS THAT SERVE THEM, THROUGH PROGRAMS OF EDUCATION, ADVOCACY, RESEARCH AND PATIENT SERVICES. PROVIDES INFORMATION FOR PATIENTS AND FAMILIES, MENTORING FOR PATIENT ORGANIZATIONS, ADVOCACY FOR THE RARE DISEASE COMMUNITY, RESEARCH GRANTS AND PATIENT ASSISTANCE PROGRAMS.
Contact Information
Address:
55 KENOSIA AVENUE
PO BOX 1968
Danbury
CT
06813-1968
Hours of Operation:
9:00-5:00 MONDAY-FRIDAY
Website:
www.rarediseases.org
Main Phone:
Phone
800.999.6673
Other Phone(s):
Phone
203.744.0100
TDD
203.797.9590
Fax
203-263-9938
Main Contact(s):
STAFF
Other Contact(s):
Main Email:
orphan@rarediseases.org
Other Email(s):
General Information
Agency ID: 1496
List of Provided Services:
Information and Referral: Information and Referral
Medical: Financial Medicine
Counties Served: Pierce, Phelps, Perkins, Pawnee, Otoe, Nuckolls, Nemaha, Nance, Morrill, Merrick, McPherson, Madison, Loup, Logan, Lincoln, Lancaster, Knox, Kimball, Keya Paha, Keith, Kearney, Johnson, Jefferson, Howard, Hooker, Holt, Hitchcock, Hayes, Harlan, Hamilton, Hall, Greeley, Grant, Gosper, Garfield, Garden, Gage, Furnas, Frontier, Franklin, Fillmore, Dundy, Douglas, Dodge, Dixon, Deuel, Dawson, Dawes, Dakota, Custer, Cuming, Colfax, Clay, Cheyenne, Cherry, Chase, Cedar, Cass, Butler, Burt, Buffalo, Brown, Boyd, Box Butte, Boone, Blaine, Banner, Adams, Platte, Polk, Red Willow, Richardson, Rock, Saline, Sarpy, Saunders, Scotts Bluff, Seward, Sheridan, Sherman, Sioux, Stanton, Thayer, Thomas, Thurston, Valley, Washington, Wayne, Webster, Wheeler, York, Arthur, Antelope, Out of State
Written material: NEWSLETTER
Eligibility: ANYONE WITH A RARE DISORDER OR ANYONE INTERESTED.
Ages Served: Ages 0 to -1
Disabilities Served: Info Only, OHI - Other Health Impairment
Wheelchair Accessible: Yes
Fees:
Sliding fee schedule: Yes
How to appeal a decision:
Languages with interpreters on staff: